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Spooniversity went live yesterday. Here is what that feels like.

Wednesday, 6 May 2026

Yesterday, Spooniversity went live.

Not with fanfare. Not with a countdown. Not with a launch post that performs excitement for an audience. I sent some messages. The platform opened. A small group of people who had signed up early got in.

That was it.

I have been building this for longer than I want to admit. Not because the technical work took that long — the stack is solid, the courses exist, the infrastructure for variable capacity is genuinely good. But because there is a specific weight in building something for people who have been failed by healthcare systems, and then asking them to trust you with their spoons.

Chronically ill patients have been sold things before. Supplements. Miracle protocols. "Clinically proven" and "studies show" and "designed by experts" — all of it aimed at people who would try anything because they are out of options. The betrayal of that is real. The scar tissue is real.

I did not want to add to it.


So I kept asking myself: is this ready enough? Not perfect. Ready enough. Honest enough. Safe enough to hand to someone on a bad body day and say — this will not waste your spoons.

I do not know that I have fully answered that question. I am not sure you can answer it fully before you start.

What I know: two pathways are live.

Bedvocates — body literacy and healthcare advocacy. Five courses for people who want to understand what is actually happening inside them and how to talk to doctors about it. Not pamphlets. Not passive information transfer. Curriculum by people who have navigated the system from the patient side.

BedOps — operations and management in healthcare. Six courses for clinicians, advocates, and people building things while living with their own constraints.

Short lessons. No streaks. No deadlines. Crash Day Mode — because bad days exist and the platform has to acknowledge them, not pretend you can push through.


I sent each early user a personal message. Not a bulk email. A message. Their name. A real thank-you.

(I know this is not scalable. I do not care yet. There are forty people. I can still know them.)

One of them wrote back within the hour. Said they had been trying to understand their diagnosis for three years. Three years of piecing things together from Reddit, Facebook groups, outdated pamphlets in waiting rooms.

I sat with that for a minute.

The plan was to wait longer. Build more. Get more courses in before I opened the door. And then I remembered: every month I waited was another month of that person in a waiting room, reading a pamphlet that treats them like a passive recipient of care rather than someone with real agency over their own body.

I opened the door.


There is something uncomfortable about soft-launching a platform built for people with limited energy when you are a person with limited energy.

You cannot afford a crash after launch. Every feature costs something. Every decision to wait also costs something. The whole thing is one big spoonie tax, levied on both sides.

Both things are true. AND both things are the design.

This is what constraint-based building looks like from the inside. Not "I built this despite my illness." The constraints of my illness are the design spec. The platform is what it is because I understand from the inside what it needs to be.

That is not a silver lining. It is just the actual mechanism.


If you have been waiting to start — the door is open.

Bedvocates. BedOps. Short lessons. Variable capacity. No pretending.

And if you are in the early group: you are not beta testers. You are the first people who trusted us enough to spend your spoons here.

That matters. I know what that costs. Thank you.

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